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Improve living donor protections by telling your living donor story HERE
Take Action
Below are a list of public policy officials and organizations who have influence over living donation related policies and laws.
Remember: always be polite, professional, and use facts and references to back up your message. See the page on the need for a Living Donor Registry for a sample letter.
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State Lawmakers.
Many organ transplant related issues, such as ratification of the latest version of UAGA, are dealt with on the state level. Many insurance issues can be resolved via state laws as well.
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Federal Lawmakers:
Find Your State Representative
House Leaders, including Speaker of the House, Office of the Majority Leader, Office of the Republican Leader, and House Majority Whip. House Committee
on Science and Technology, specifically the Subcommittee on Research and Science Education, responsible for "research and development relating to health,
biomedical, and nutritional programs" (e.g. stem cell research which could be used to grow donor organs) Senate - Find your Senator (search in upper right corner of page) Committee on Commerce, Science and Transportation, whose jurisdiction includes "Science, engineering, and technology research and development and policy." Includes stem cell research and the health insurance industry. Committee on Health, Education, Labor and Pensions, specifically
Health Policy, which oversees the Department of Health and Human Services (DHHS), and public health and health insurance statutes. ** (see
Public Policy Organization page for detailed descriptions of each institution) Secretary of Health Kathleen Sebelius. Office of the Secretary number - 202-690-7000 Department of
Health and Human Services (DHHS), parent department of HRSA, OPTN, etc. The U.S. Department of Health and Human Services Health Resources and Services Administration (HRSA): HRSA, Dept of Transplantation:
Advisory Committee on Organ Transplantation (ACOT), established by DHHS as an neutral voice
for issues and policies of organ transplantation. Attend and testify at twice a year meetings, or
Contact specific members.
Organ Procurement and Transplantation Network (OPTN).
Provide feedback regarding proposed policy changes, or sign-up to receive
public comment notices. Also, join a committee, attend committee event, or
contact a committee member. Minority Affairs:
http://optn.transplant.hrsa.gov/members/committeesDetail.asp?ID=19 Find your OPTN region, and contact the
Councillor and Administrator (found on
Board or Directors page)
United Network for Organ Sharing (UNOS). OPTN's private contractor to administer the national organ transplant waiting list. Contact
Key Staff. And - join our
newsletter. Last updated: May 22,
2012
Public Policy Departments and Organizations.
200 Independence Avenue, S.W.
Washington, D.C. 20201
Telephone: 202-619-0257
Toll Free: 1-877-696-6775
Richard Durbin, MBA
Director
Division of Transplantation
Parklawn Building, Room 12-C-06
5600 Fishers Lane
Rockville, MD 20857
(301) 443-6804
(301) 443-1267
rdurbin@hrsa.gov
Christopher McLaughlin
Chief, Operations and Analysis Branch
DHHS, HRSA, Division of Transplantation
Room 12C-06
5600 Fishers Lane
Rockville, MD 20857
(301) 443-0036
(301) 594-6095
cmclaughlin@hrsa.gov
Living Donor:
http://optn.transplant.hrsa.gov/members/committeesDetail.asp?ID=59
Ethics:
http://optn.transplant.hrsa.gov/members/committeesDetail.asp?ID=3
Board:
http://optn.transplant.hrsa.gov/members/boardOfDirectors.asp